Join us. Our hope begins with you. image

Join us. Our hope begins with you.

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2017 marks our 32nd year—and three major advances in Ehlers-Danlos research, diagnosis, and management:

  • Launch of The International Consortium on EDS and Related Disorders
  • First comprehensive international classification in nearly two decades, coinciding with the publication of our own supplement to the American Journal of Medical Genetics in March 2017
  • Initial organization of the first-ever global registry for Ehlers-Danlos syndromes

Our strength begins with hope.

Today we've found even greater hope, knowing for the first time since Ehlers-Danlos was first identified, that hundreds of medical professionals are now working together throughout the world to:

  • Identify the underlying causes behind EDS/HSD
  • Advance the methodology and criteria necessary for early diagnosis
  • Develop next generation treatments and management options

Join us. Help us help each other to build a new foundation for:

  • Early diagnosis
  • Clear, consistent diagnostic criteria
  • Effective treatment, management, and care guidelines

Our strength begins with hope—and our hope begins with you.

Join The Ehlers-Danlos Society Founders Circle, today.

$25,000 – Partner

  • Seat on Advisory Council
  • One named scholarship at Global Learning Conference
  • Two transferable Global Learning Conference VIP tickets
  • Two VIP invitations to special donor reception at global learning conference
  • Name on website as Charter Member at Partner level
  • Discount on educational events
  • Two branded clothing items
  • Two Charter Member lapel pins
$10,000 – Champion
  • Named scholarship at Global Learning Conference
  • Two transferable Global Conference VIP tickets
  • Name listed on website as Charter Member at Champion level
  • Two VIP Invitations to special donor reception at Global Learning Conference
  • Discount on educational events
  • Two branded clothing items
  • Two Charter Member lapel pins
$5,000 – Benefactor
  • Two transferable Global Learning Conference VIP tickets
  • Two VIP Invitations to special donor reception at Global Learning Conference
  • Name on website as Charter Member at Benefactor level
  • Discount on educational events
  • Two branded clothing items
  • Two Charter Member lapel pins
$2,500 – Patron
  • One transferable global conference ticket
  • VIP Invitation to special donor reception at Global Learning Conference
  • Name on website as Charter Member at Patron level
  • Discount on educational events
  • Two branded clothing items
  • Two Charter Member lapel pins
$1,000 – Sponsor
  • VIP Invitation to special donor reception at Global Learning Conference
  • Name on website as Charter Member at Sponsor level
  • Discount on educational events
  • Two branded clothing items
  • Charter Member lapel pin
$500 – Supporter
  • Discount on educational events
  • One branded clothing item
  • Name on website as Charter Member at Supporter level
  • Charter Member lapel pin

$100 – Friend

  • Discount on educational events
  • Charter Member lapel pin
$50 – Member
  • Charter Member lapel pin

The Ehlers-Danlos Society is a global community of patients, caregivers, medical professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes and related disorders.

We support collaborative research initiatives, awareness campaigns, advocacy, community building, and care for the EDS population. Our goals are worldwide awareness — and a better quality of life for all who suffer from these conditions. Research is at the center of what we do, so that one day we will have a cure.

Our strength begins with hope. Our hope begins with you.