Raising funds for Ehlers Danlos Syndrome research and resources for Zebras (EDS warriors) like me!

I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society. If you are able, please support me by donating to my fundraising page. Together, even a small amount can make a huge difference!

This cause is near and dear to my heart because my twin sister and I are living this life with hEDS (Hypermobile Ehlers-Danlos)! If you have never heard of EDS, you are very much not alone!! Even the medical community at large doesn’t know about it... that’s why we are in need of funds for research and resources!

Here is a quick general summary if the syndromes 🙃 For more in depth info, check out The Ehlers Danlos Society (Ehlers-Danlos.com

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with EDS by donating. Thank you!