Help spread awareness of EDS/HSD during the month of May!

Join me in supporting real change. Let’s support good in the world and make a difference. Help us for The Ehlers-Danlos Society

Just a small donation will go a long way to helping me meet my goal for The Ehlers-Danlos Society.

Ehlers-Danlos syndrome is a group of genetic disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications.

It takes most EDS patients 10 to 20 years to be correctly diagnosed!

I started having muscle and joint pain as a teenager, and over the years I developed and/or discovered additional symptoms including hyperextending joints, degenerative disc disease, osteoarthritis, fatigue, chronic pain, digestive problems, slow wound healing and dysautonomia. Almost three decades later, the pieces of the puzzle all finally fit together, and I was diagnosed with Hypermobile EDS at the age of 43.

I'm grateful for the depth of information and resources that currently exist, but there is still a lot that's unknown about this rare disease. Please consider joining me in supporting The Ehlers Danlos Society and their mission of furthering research and education about EDS.