Together we can DAZZLE

Hi! My name is Alyssa & I am 21 years old. I offically received a hEDS diagnosis when I was 17 years old. I had exhibited symptoms of EDS my whole life but the doctors could never fit the puzzle pieces together as to why I had very hyper-mobile joints, joint pain, fatigue, poor wound healing, skin that bruised easily, joint subluxations etc.. I went years misdiagnosed because so many doctors where unaware of EDS. Along with EDS I have several comorbidities such as Hyperagrenergenic POTS, Chiari Malformation, Craniocervical Instability/Cranial Settling, Tethered Spinal Cord & Pseudotumor Cerebri also know as Intracranial Hypertension. In 2018 I had a craniocervical fusion to help with the instability & brain/brainstem compression. In 2019 I had a tethered spinal cord relase. In 2020 I had a VP shunt placed to help treat the high intracranial pressure.