Lucia Mecchi

Lucia Mecchi's Fundraiser

Donate to help further research and resources for those with Ehlers Danlos Syndrome image

Donate to help further research and resources for those with Ehlers Danlos Syndrome

May is EDS Awareness Month. Donate today!

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$465 towards $500

Zebra Strong for The Ehlers-Danlos Society

I am raising awareness and funds for The Ehlers-Danlos Society. Together, even a small amount can make a huge difference! The Ehlers-Danlos syndromes (EDS) are a group of 14 heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Hallmark symptoms across all types are hypermobile joints, skin hyperextensibility, & tissue fragility. Each case is unique and severity may range dramatically, even within families. The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

I was diagnosed with EDS almost 4 years ago shortly after my mom. My main symptoms range from frequent/daily joint dislocations & subluxations to chronic fatigue, chronic pain, stretchy skin, as well as chronic fatigue. Last year, I did a similar fundraiser during the month of May and raised over $600 and I’m hoping to do that again! Any donation is greatly appreciated and if you’re unable to donate, just sharing this fundraiser would go a long way. I plan to make this fundraiser a tradition as there is not enough information out there about Ehlers Danlos Syndrome and I’d like to be able to help in any way I can, especially having EDS myself.

Thank you for taking the time to read this and donate! :))