Lucia Mecchi's Fundraiser
Donate to help further research and resources for those with Ehlers Danlos Syndrome
May is EDS Awareness Month. Donate today!
Zebra Strong for The Ehlers-Danlos Society
I am raising awareness and funds for The Ehlers-Danlos Society. Together, even a small amount can make a huge difference! The Ehlers-Danlos syndromes (EDS) are a group of 14 heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Hallmark symptoms across all types are hypermobile joints, skin hyperextensibility, & tissue fragility. Each case is unique and severity may range dramatically, even within families. The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.
I was diagnosed with EDS almost 4 years ago shortly after my mom. My main symptoms range from frequent/daily joint dislocations & subluxations to chronic fatigue, chronic pain, stretchy skin, as well as chronic fatigue. Last year, I did a similar fundraiser during the month of May and raised over $600 and I’m hoping to do that again! Any donation is greatly appreciated and if you’re unable to donate, just sharing this fundraiser would go a long way. I plan to make this fundraiser a tradition as there is not enough information out there about Ehlers Danlos Syndrome and I’d like to be able to help in any way I can, especially having EDS myself.
Thank you for taking the time to read this and donate! :))