Striving for world-wide awareness and a better quality of life for those with EDS & HSD!

MAY IS EDS HSD AWARENESS MONTH!

Hi all! As many of you know, I have been cast in the role of hEDS Zebra 😉 Booked it! What you may see is a silly someone who sits in peculiar bendy positions on the couch in the green room. But there are also so many challenges that come along with EDS that can’t be seen from the outside. Living this role can sometimes be like acting in Titus Andronicus with no stage direction, director or stage manager, and an audience who thought they had tickets to see Hairspray; Confusing, overwhelming, and painful. (I tried to stay on theme 😉) And I am definitely a lucky EDSer. Knowledge of EDS within the medical community is sorely lacking and it takes YEARS for most people to even get a diagnosis, let alone find specialists who can help with care for specific challenges and needs. **Missouri is very much lacking in these doctors.

Please join me in supporting real change. Let’s help The Ehlers-Danlos Society continue working to provide education, research, awareness campaigns, advocacy, and care for the EDS and HSD population. In doing so, we can help give HOPE to all those whose lives are affected by EDS and HSD. Your donation to this incredible organization would mean the world to me. The Ehlers-Danlos Society is a powerhouse driver of research as well as an invaluable resource for EDS/HSD zebras as we navigate this journey.

Just a small donation will go a long way to helping me meet my goal for The Ehlers-Danlos Society. Or if donating isn’t doable right now, please share my fundraiser ❤️ Thank you SO MUCH!