Alaynah Hamilton

Alaynah Hamilton's Fundraiser

Ehlers Danlos Awareness Month! image

Ehlers Danlos Awareness Month!

Join me and help make a difference, please give today.


$100 towards $1,000

Not only is May EDS and HSD Awareness Month, but it's also my birthday month. In December of last year I was diagnosed with Hypermobile Ehlers Danlos Syndrome. Being diagnosed was the best and worst thing to happen to me. I finally got to know what's "wrong" with me after years of chronic pain never having any answers, but it also meant I had to come to terms with the fact that I have a debilitating disorder that can worsen over time (which it has), and has resulted in becoming disabled.

There are 13+ different types of EDS and it is a connective tissue disorder which results in faulty collagen and can lead to dislocations, tears, chronic pain, and comorbidities like POTs and MCAS. Ehlers Danlos Syndrome effects 1 in 5,000 to 20,000 people, or roughly 0.0002% to 0.00005% of the population making it considered rare. Because it's rare, many doctors and specialists are unfamiliar with it and/or refuse to treat it as it's incurable and "a matter of coping".

I want to raise awareness and funds for this as it has effected so many other people like me. Just a small donation can go a long way to helping meet my goal for The Ehlers-Danlos Society, which can help research studies to find the cause for this disorder. Please help or repost if you can ๐Ÿ’•