Sofie Strompf

Sofie Strompf's Fundraiser

Support EDS Research, Advocacy, and Outreach πŸ©΅πŸ¦“ image

Support EDS Research, Advocacy, and Outreach πŸ©΅πŸ¦“

YOU can help make a difference!


$701 towards $750

May is Ehlers-Danlos Syndrome & Hypermobile Spectrum Disorders Awareness Month!

EDS is the "most common disease you've never heard of." Together, we can change that. Every dollar makes a difference!

The Ehlers-Danlos Syndromes are a group of 13 genetic connective tissue disorders that come with many comorbidities, and can be absolutely devastating to live with. There's no NIH grant funding for research focused on these disorders, and often, it takes years for patients to get diagnosed. I was one of those patients, having been diagnosed at 19 years old, after over 13 years of debilitating symptoms and traveling all over the U.S. to consult with doctors. I am raising money for the Ehlers-Danlos Society in hopes of preventing other patients from having to go through the nightmare that was waiting 13 years to receive a diagnosis, and in hopes of raising money to support the Ehlers-Danlos Society's research, advocacy, and patient support efforts.

Every dollar has an impact, and every donation, no matter the amount, makes a difference.

Please consider donating today!