Sofie Strompf's Fundraiser
Support EDS Research, Advocacy, and Outreach 🩵🦓
YOU can help make a difference!
A supporter of Sofie Strompf
"Sorry for being so late in responding. Hope you are doing well."
$100
A supporter of Sofie Strompf
I donated in support of this campaign.
$50
A supporter of Sofie Strompf
"Rico & Sunny are proud of the self-educated expert and ornery self advocate. Love your determination to educate all and help others crest the hill."
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Nancy Strompf
I donated in support of this campaign.
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Elliott F.
"bonus birthday donation because of how much energy and work you've put into eds research and advocacy :) here's to future advancements!!"
$20
A supporter of Sofie Strompf
"Sofie, Your awareness raising for Ehlers-Danlos Syndrome is such a great cause. We wish you the best! Sending all our love, Dale and Jim"
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Ken VanDerHorst
"We support this heroic young woman who has gone through so much in her young life. True Grit."
$50
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Fran Katz
I donated in support of this campaign.
$100
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Elliott F.
I donated in support of this campaign.
$10
May is Ehlers-Danlos Syndrome & Hypermobile Spectrum Disorders Awareness Month!
EDS is the "most common disease you've never heard of." Together, we can change that. Every dollar makes a difference!
The Ehlers-Danlos Syndromes are a group of 13 genetic connective tissue disorders that come with many comorbidities, and can be absolutely devastating to live with. There's no NIH grant funding for research focused on these disorders, and often, it takes years for patients to get diagnosed. I was one of those patients, having been diagnosed at 19 years old, after over 13 years of debilitating symptoms and traveling all over the U.S. to consult with doctors. I am raising money for the Ehlers-Danlos Society in hopes of preventing other patients from having to go through the nightmare that was waiting 13 years to receive a diagnosis, and in hopes of raising money to support the Ehlers-Danlos Society's research, advocacy, and patient support efforts.
Every dollar has an impact, and every donation, no matter the amount, makes a difference.
Please consider donating today!