Lily Baker's Fundraiser
Support Ehlers-Danlos Syndrome patients and research!
Help make EDS visible, please give today.
Margot Holley
I donated in support of this campaign.
It is Ehlers-Danlos syndrome (EDS) and related hypermobility spectrum disorders (HSD) awareness month! In honor of this month, I am once again raising money for the Ehlers-Danlos Society, an organization that helps fund EDS research and supports those with EDS or HSD, like my sibling Tatum and I!
EDS is a group of rare, inherited disorders that impact your connective tissue (joints, blood vessels, skin, etc). People with EDS often have unstable joints that are prone to subluxations/dislocations, chronic pain, dysautonomia, gastrointestinal issues, and those with vascular EDS (an EDS subtype) can experience arterial fragility and ruptures. It is important for people to be diagnosed early on in life so that they can receive speciality care and can look out for the more dangerous symptoms. Unfortunately, far too many people are denied treatment or are treated incorrectly because of misconceptions and a lack of understanding about EDS. This is why awareness is key!
Please donate if you are able! Also, I encourage everyone to visit https://www.ehlers-danlos.com/ to learn more about EDS and HSD😋