Give today to make a difference in the lives of people living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders image

Give today to make a difference in the lives of people living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders

Our strength begins with hope. Our hope begins with you.

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Together We Dazzle

Our Mission

The Ehlers-Danlos Society is a global community of individuals, caregivers, healthcare professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and related conditions.

We are proudly working to provide global learning conferences, collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for the EDS and HSD population: Giving HOPE to all those whose lives are affected by EDS and HSD.

What We Do

Our goals are world-wide awareness—and a better quality of life for all who suffer from these conditions. Research is at the center of what we do, so that one day we will have a cure. Our strength begins with hope.

Many around the world face a diagnostic odyssey: years, sometimes lifetimes, fighting for recognition, diagnosis, and care. The Ehlers-Danlos Society is working towards a time when geography and wealth no longer determine your quality of life.

Education is needed to advance early diagnosis and intervention—and post-diagnosis, patients urgently need support and guidance. We want to give hope to all those living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders.

At The Ehlers-Danlos Society, our strength begins with hope.

Join us. Our hope begins with you.


We are happy to be able to receive donations from all over the world and solicit funds in the US states of WA, ID, NV,UT, AZ, WY, MT, ND, SD, NE, OK, TX, IA, MO, LA, SC, DE, RI, VT, and ME.