Strength begins with hope and hope begins with you.

Help us increase awareness, fund patient advocacy, and create a better quality of life for all who suffer from Ehlers-Danlos Syndrome worldwide. The condition is just rare enough that most of us are misdiagnosed, not believed, or dismissed as bendy circus freaks by doctors and nurses. I've been all of those (not fun).

I'd like to introduce those folks to my kinesiologist, neurosurgeon, PTs, geneticists, MRI techs, countless nurses, and PCPs as they've dealt with my dissolving spinal discs, partially or fullydislocated vertebrae, shoulders, fingers, ankles, ribs, and hips; countless sleepless nights due to an out of whack nervous system; and buckets of saline as I try to put a smiling face on it all.

Donations of all sizes will go a long way to helping me meet my goal for The Ehlers-Danlos Society. Thank you so very very much!