Help bring awareness to EDS!

Growing up, I was a non-stop dancer. When I was young I did not experience any issues when dancing, but as I continued I begun to notice pain throughout my legs. I went to many doctors over the years and none of them could figure out what was wrong. It wasn't until after almost 2 years of trial and error that I was diagnosed with Ehlers-Danlos Syndrome in 2011. EDS continues to affect my daily life and has made itself present in new areas of my body. It took a while for my diagnoses since EDS is a rare condition. Any donation that is made will help tremendously. Currently, there is one main research facility for EDS, I applied for an appointment, got a call 2 years later to schedule my appointment and now am scheduled to be seen in 2018. This demonstrates how much we are in need of more funding to help with research.

EDS is a genetic disorder in which the body struggles to make collagen. Collagen is like glue in the body that holds everything together. There are many side affects of this deficiency which differ for each type. The one of the main affects due to lack of collagen is chronic pain that can make daily activities hard. Joints become easily dislocated and more fragile resulting in more injuries over time.

Thank you for any contribution you are able to make! Every dollar helps!

Join me in supporting real change. Let's support good in the world and make a difference. Help us for The Ehlers-Danlos Society

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