Raise Awareness for EDS

Help me make an impact for families like mine. Help raise awareness for EDS and raise funding for a registry of Ehlers-Danlos Syndrome Patients to provide support to them that is currently lacking within many medical communities.

As you may or may not know, I have recently been diagnosed with Hypermobility Syndrome and am waiting an appointment with a geneticist in June through Wake Forest Baptist Hospital to receive a definitive diagnosis for EDS; there are many subtypes. EDS is a genetic disorder that affects the collagen and is most visable with the joints, potentially causing injury and pain with simple daily living tasks. However, much is unseen. It can affect organs systems as well and often has comorbidities like fibromyalgia, Sjogren's (an auto immune disorder), chronic fatigue/pain, and more. Being so, it is difficult for doctors to diagnose unless familiar with the various types.

I am attempting to raise funds for a patient registry to help families like myself and my kids and awareness through the campaign by asking friends and family to post Ehlers-Danlos related posts and memes on their social media throughout May, EDS Awareness Month. Please help me make a difference? Early diagnosis makes a difference that can range from saving a life to better mobility minus a wheelchair or cane. LETS GO TEAM ZEBRA! Any donations from sales of zebra related art, crafts, or writing is greatly appreciated as well. May 12th will be wear stripes day!!