Alexis Macneill

Alexis Macneill's Fundraiser

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Help a Zebra Out

Please, if you can, help me reach my goal to help fund EDS research!

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Zebra Strong for The Ehlers-Danlos Society

Ever since I remember I have felt like there was something off about my body. In and out of the doctor I could never find out what the root cause was for all my random issues and had most of them chalked up to anxiety and depression. In December 2018 I was clinically diagnosed with Ehlers-Danlos Syndrome and I'm now waiting for my official genetic diagnosis to find out which type. I went 26 years without a diagnosis because of lack of awareness. So now I am going to help to raise the awareness and funds for The Ehlers-Danlos Society.

The Ehlers-Danlos syndromes (EDS) are a group of 14 heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Classic symptoms across all types are hypermobile joints, skin hyperextensibility, & tissue fragility. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. The goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.


Please support me, and together we will overcome!