Katherine Putnam's Fundraiser
Ehlers Danlos Awareness + Research
Stubborn + Stretchy
Stubborn + Stretchy
I deal with some effect of Ehlers-Danlos Syndrome everyday, from joint dislocations to pain and slow healing, but I refuse to let the condition define or limit me. I've had numerous medical professionals tell me I should never run, however, I'm innately stubborn, and as a result, have decided to become a runner, and a long-distance runner at that!
I am raising awareness and funds for The Ehlers-Danlos Society. Together, even a small amount can make a huge difference! The Ehlers-Danlos syndromes (EDS) are a group of 14 heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Hallmark symptoms across all types are hypermobile joints, skin hyperextensibility, & tissue fragility. Each case is unique and severity may range dramatically, even within families.
The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.