Support #myEDSchallenge and help me reach my goal!

I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society by participating in this fundraiser.

From a young age it was obvious that there was something that made me different from my peers. I was getting injury upon injury, constantly sick and covered in bruises with no known cause. As I grew older, we still had no answers. Eventually, my symptoms progressed until the point of being unable to get out of bed. In 2018, I was diagnosed with HSD and fibromyalgia. Throughout the last year, I have continued to fight through fatigue, intestinal dysmotility, severe abdominal pain, Dysautonomia (dysfunction of the autonomic nervous system), Vocal Cord Dysfunction, Pelvic Floor Dysfunction and an array of other unusual symptoms. In March I was hospitalized for malnutrition and given a temporary nasal feeding tube. Since my discharge, it’s been a constant fight to maintain my weight and fight the constant subluxations, fatigue and pain, but I’m so thankful for everything my illness has taught me along the way. Though I may not be able to do everything my peers are capable of, I wouldn’t take myself any other way

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with EDS by donating. Thank you!