Support #myEDSchallenge and help me reach my goal!

I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society by participating in as many of the challenges set, in honor of the struggle many members of my family have had to endure to get a diagnosis and help. The more awareness there is is of these conditions, the less others with them will suffer. Please support me by donating to my fundraising page. Together, even a small amount can make a huge difference!

As any of you who know me will know, I struggled with daily joint pain for many years, being told all sorts down the line, such as 'it's growing pains' or 'it's your weight' and the good old 'you're exaggerating/it's in your head'. You'll know that in the past year, I've finally got a pain management programme and physiotherapy. But imagine if the doctors I saw at the age of 13/14, or my teachers who saw a healthy young girl struggle to walk for a longer length of time, had knowledge of EDS and HDS. Imagine I got the help I pleaded for at that age, instead of at 28. It's too late to take that back for me, to reverse the damage done to my body and mental health. But thanks to things like The Ehlers-Danlos Society, awareness is being raised and I can improve my quality of life, manage my pain levels more successfully and perhaps make sure that if it's been passed to my daughter, that she doesn't suffer through lack of knowledge like me and my siblings and my mother.

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with EDS to participate in the May Awareness Month by donating. Thank you!