Support #myEDSchallenge and help me reach my goal!

I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society!

Please support me by donating to my fundraising page. Together, even a small amount can make a huge difference!

I was not diagnosed with EDS until last year, but it has been the underlying cause of my health concerns for my entire life. I have autoimmune disease, POTS, sleep apnea, severe digestive inflammation, multiple musculoskeletal issues- including dislocation of ankles and knees, cervical spine collapse and fusion, and TMJ.

For YEARS, I was misdiagnosed with multiple sclerosis. This lead to unneeded medications and worsening symptoms. Awareness is so very needed so patients don’t have to suffer until nearly 40 before they receive effective care and treatment.

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with EDS by donating. Thank you!