Courtney McHugh

Courtney McHugh's Fundraiser

Support #myEDSchallenge and help me reach my goal! image

Support #myEDSchallenge and help me reach my goal!

Together we can improve the lives of all with EDS, world wide

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I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society by participating in the May Awareness Fundraisers and Daily Challenges in honor of all the zebra warriors I’ve met since being diagnosed with Hypermobile Ehlers-Danlos Syndrome in 2016. Please support me by donating to my fundraising page. Together, even a small amount can make a huge difference!

My personal mission is to raise awareness about Ehlers-Danlos Syndromes so that no one has to go through the frustration and shame of fighting for a diagnosis. There’s no cure for Ehlers-Danlos, but I hope that the money raised by me and my fellow peers will help us and future generations find more ways to manage our life with this condition.

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with EDS to participate in the May fundraising event by donating. Thank you!