Dani Mauk

Dani Mauk's Fundraiser

Support #myEDSchallenge and help me reach my goal! image

Support #myEDSchallenge and help me reach my goal!

Together we can improve the lives of all with EDS, world wide

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I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society. Please support me by donating to my fundraising page. Together, even a small amount can make a huge difference!

I was diagnosed with hEDS in January of 2018, most people are diagnosed around elementary school age. This has been a very tough road for me. I was constantly getting injured and we had no clue why. I would get made fun of and bullied if I had a brace on on had crutches. This lead to me doing some pretty bad things and endangering myself. I’m almost constantly in pain, and there’s nothing that can be done. Horses and animals are my absolute passion and reason to push through. Unfortunately some days are harder than others and I don’t get to ride or do stuff I want to do. This has been a hard road and will continue to be difficult for me and my loved ones. This may not be my ideal life but I’m not stopping anytime soon.

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with EDS by donating. Thank you! One day a cure may be found to help us