Emily Learn

Emily Learn's Fundraiser

Support #myEDSchallenge and help me reach my goal! image

Support #myEDSchallenge and help me reach my goal!

Together we can improve the lives of all with EDS, world wide

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I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society by participating in the personal challenges in honor of my family and friends effected by EDS. Please support me by donating to my fundraising page. Together, even a small amount can make a huge difference!

I was diagnosed with EDS a little over 2 years ago and it has really had an effect on my life. Despite all of the negative ways it makes me feel, it has opened my eyes to see the people that are always there for me, to take the good days as they come, and to be thankful for what I have. I am raising money for me, my family, my friends, and all those who are effected by EDS in hopes that one day, we can feel normal again. I am raising money for a change!

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with EDS to participate in the personal challenges by donating. Thank you!