Support #myEDSchallenge and help me raise money for research!

I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society. Please support me by donating to my fundraising page. Together, even a small amount can make a huge difference!

I was diagnosed back in 2008. It wasn’t the diagnosis anyone wants to hear, but it answered a lot of questions about my health. Due to my EDS, I have had 11 surgeries thus far and several other joints that need to be repaired. I have several heart conditions that need to be monitored closely that require quite a few medications to keep everything beating and pumping as it should. My medical team is amazing. I regularly see my GP, Neurologist, vascular surgeon, cardiologist, and orthopedic surgeon. I’m truly blessed as they all take wonderful care of me. I’m even on speed dial with some!

EDS is a fight every single day, hour, minute, but I am a Zebra Warrior!!!

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I spread awareness for this incurable disease. Thank you!