Support #myEDSchallenge and help me reach my goal!

I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society in memory of my friend Emet. Please support me by donating to my fundraising page. Together, even a small amount can make a huge difference!

I met Emet online through the EDS community on Instagram. We had a lot in common beyond our diagnoses and I appreciated his openness about chronic illness and disability. He passed away March 25th, 2019, after a long road with EDS complications. He was 24.

I'm raising money to help people like Emet and me live longer, less painful lives.

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with EDS to participate in May Awareness Month by donating. Thank you!