Support #myEDSchallenge and help me reach my goal!

I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society by participating in this fundraising event to help people struggling with this to find answers. Please support me by donating to my fundraising page. Together, even a small amount can make a huge difference!

I have had little symptoms of EDS all my life but never realised it. When I was about 7-8 I would sprain my wrists a lot and carry a bandage around with me. People thought I was just attention seeking and that I didn't need a bandage, but about 6 years later they were all proved wrong. When I was 14 things went downhill very quickly, I dont actually remember how many dislocations and injuries I had but it was a lot. When I had an injury I was unable to do many things that I had done before. School was especially hard because I kept falling behind in every subject ( especially practical subjects ) and I still do sometimes. I have still not been diagnosed with EDS hyper mobility type 3 as the process to get a diagnoses is so long. Scientists are still not sure what causes EDS type 3 but hopefully one day they will. Many doctors are also uneducated about EDS, some too scared to duagnise it. I still face many struggles I have learnt that I am going to have to live with pain. I am 15 now and things aren't as bad as they were because of those people who didn't doubt me. I am now getting stronger and I will fight for my life.

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with EDS to participate by donating. Thank you!