Help provide care and research for people with EDS & HSD.

I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society. Please support me by donating to my fundraising page. Together, even a small amount can make a huge difference!

After serval tests to find the reason for my fatigue, a sports injury, several dislocating joints, and two miscarriages, I was diagnosed with Hypermobile Ehlers-Danlos Syndrome (hEDS), a connective tissue disorder. Connective tissue makes up 80% of everyone’s bodies, so EDS affects me in several different ways. I’m daily battling chronic pain and fatigue amongst other things. Sadly, there isn’t much known about EDS. Scientists know what causes the other 12 types of EDS, but they do not know what causes my type— hEDS. The Ehlers-Danlos Society is doing phenomenal work to support people with EDS/HSD (Hypermobility Spectrum Disorders). Currently they are breaking ground with a study to find out what cause hEDS, which means we could know how to better treat it.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with EDS. Thank you!