Support #myEDSchallenge and help me reach my goal!

I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society. A major need currently is to develop a genetic test for my type, hEDS, to make diagnosis more available and simplistic, and to reduce the chaos of patients searching endlessly for diagnosis and treatment. There are already several genetic studies happening (one I will participate in) as a result of an anonymous 1 million dollar donation last year. Please support me by donating to my fundraising page. Together, even a small amount can make a huge difference!

If you want to know my story, I’d love to meet up and talk! You can also follow my Instagram and Facebook page Trina the Zebra for some information I periodically put out there.

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with EDS to participate in this campaign by donating. Thank you!