Support #myEDSchallenge and help me reach my goal!

I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society. Please support me by donating to my fundraising page. Together, even a small amount can make a huge difference!

I have hypermobile type Ehlers Danlos Syndrome. I was diagnosed with hEDS at 18 years old after being dismissed and misdiagnosed by doctors from the age of 14. For years, I lived with chronic pain, GI dysfunction, dysautonomia, and other symptoms and had doctors telling me it was all in my head. When I was 18, I was diagnosed with EDS and I felt so much relief. One of the reasons it took so long for me to get diagnosed is because EDS is a rare disease that can present with vague, general symptoms and the fact is - not many doctors are aware of EDS! I'm supporting the Ehlers Danlos Society this EDS Awareness month to spread awareness of this disease so people can get diagnosed and begin treatment sooner. EDS can cause irreversible joint damage and other complications, so knowing you have it is vital! With donations, more research can be done on this incurable disease and hopefully more awareness can be spread!

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with EDS by donating and spreading awareness. Thank you!