Support #myEDSchallenge and find a way to better the lives of people worth EDS.

I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society by telling my journey! Please support me by donating to my fundraising page. Together, even a small amount can make a huge difference!

Life is a journey which has many seasons. My name is Storm and I am 21 years old. It took doctors 18 years to diagnose me with EDS (Ehlers Danlos Syndrome). I first dislocated when I was one and a half, either the doctors thought it was nurses elbow or that my parents abused me, but that was not the case. As the years went on I was getting more and more flexibility and dislocated more frequently. I have lived but a fraction of my journey and have enjoyed and endured many seasons thus far. I’d like to share some seasons with you; I have been an athlete that has taken me to some of my greatest heights and to my lowest of lows as I competed in cross country, gymnastics, track & field, softball, cheerleading and competitive cheerleading. I am a friend, a girlfriend, a sister, a daughter, a grand daughter, a great grand daughter, and a cousin. I have had multiple surgeries, with many to come. I was diagnosed with a learning disability at a young age yet I was accepted into the Radiology program. I have worked two jobs while going to school and I have achieved all of this while being a Zebra. My EDS is progressing for the worse so instead of being down about it I’m going to raise awareness! I’ve always had Ehlers Danlos Syndrome but Ehlers Danlos Syndrome has never had me.

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with EDS to participate in the movement to find a cure by donating. Thank you!