Amy Cosi

Amy Cosi's Fundraiser

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Overcoming EDS Challenges

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$100 towards $250

Zebra Strong for The Ehlers-Danlos Society

I am raising awareness and funds for The Ehlers-Danlos Society. Together, even a small amount can make a huge difference! The Ehlers-Danlos syndromes (EDS) are a group of 14 heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Hallmark symptoms across all types are hypermobile joints, skin hyperextensibility, & tissue fragility. Each case is unique and severity may range dramatically, even within families.

I have been living with symptoms from my Hypermobile Ehlers-Danlos Syndrome (hEDS) for as long as I can remember. It affects nearly everything I do, from how I write to how I walk. hEDS also often comes with comorbidities like mast cell activation syndrome (MCAS) or postural orthostatic tachycardia syndrome (POTS). I always have hives on my skin and I feel faint often when I stand.

EDS research is personal for me. Finding the gene(s) responsible for hEDS is the first step in learning to prevent it.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.


Please support me, and together we will overcome!