Support #myEDSchallenge and help me reach my goal!

I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society. Please support me by donating to my fundraising page. Together, even a small amount can make a huge difference!

I have gone to Mayo multiple times over the past 6 months. It all started around October when my knee was giving me more problems then it usually does. I started off by seeing a joint specialist in Savannah. After getting x-rays and MRI's done he determined that I needed to go to a knee surgeon so off to Mayo I go and I meet Dr.Ortiguera. He is so nice and considerate when trying to plan something. When I first saw him he went through about 3 different types of surgeries that might fix my knee. But because I am "double jointed" he wanted to get my tested for Ehlers Danlos. So about a month after they send in a sample of tissue from my back. A few weeks later I get a letter that says yes I so have Ehlers Danlos. It is a connective tissues disorder. With that knowledge my doctor said it is not a good idea to go ahead and have surgery because I am more prone to infection and it just not working because I now have Ehlers Danlos. I have done some research on different types and I am so thankful that I have a very minor, classic type of EDS but there is a very good change it can get worse as I get older.

I have waited months to just find out I can't have surgery on my knee to help it. I am soon going to yet another doctor, a Rheumatologists, to see what they have to say. So that makes 3 doctors in 6 months. But you know, even if I get put down every time I go to the doctor, I have learned over these past few months to always have faith in the Lord. I do believe we will find answers somewhere.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with EDS by donating. Thank you!