Maddie Englese

Maddie Englese's Fundraiser

Support #myEDSchallenge and help me reach my goal! image

Support #myEDSchallenge and help me reach my goal!

Together we can improve the lives of all with EDS, world wide

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I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society by participating in the #MyEDSChallenge in memory of Jaquie Beckwith . Please support me by donating to my fundraising page. Together, even a small amount can make a huge difference!

As many of you know I struggle daily with Ehlers Danlos Syndrome, hypermobile type. As I try to be more open with my journey in order to educate and advocate for myself and others I recognize that there is still a long way to go. Ehlers Danlos Syndrome is not recognized by most of the medical community and education for doctors is scarce EDS Society holds yearly conference for doctors and patients in order to educate to save and better lives of people with EDS world wide. Please join me in my challenge this May to raise awareness and funds for EDS and bring awareness to this rarely diagnosed condition

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with EDS to participate in the #MyEDSChallenge by donating. Thank you!