Drew Hall

Drew Hall's Fundraiser

Support #myEDSchallenge and help me reach my goal! image

Support #myEDSchallenge and help me reach my goal!

Together we can improve the lives of all with EDS, world wide

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I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society by participating in the awareness/fundraising challenge. Please support me by donating to my fundraising page. Together, even a small amount can make a huge difference!

May is Ehlers-Danlose Syndrome (EDS) awareness month.

Ehlers-danlose Syndrome is a rare connective tissue disorder that affects every organ, joint, and blood vessel. Those with Ehlers-Danlos Syndrome, such as myself have other diagnosis and their experience/obstacles with this are different for everyone.

Ehlers-Danlose Syndrome is diagnosed into 7 types and I just happen to have type 2(classical type) and type 3(vascular type). Each type affects different parts of the body. This chronic illness comes with many other diagnoses and/or mimics other diagnoses such as POTS, Dysautomonia, Fibromyalgia, etc. I am wanting to spread awareness and talk about what it's like in the day and the life time for someone with EDS. How it affects us, how much we fight, what we can learn from it.

EDS is considered an invisible illness where the condition isn't easily visible to others. Just because someone looks fine doesn't mean that they are. This is an often confusing misunderstanding to some people.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography

Please support me as I overcome my challenges with EDS to participate in the awareness/fundraising challenge by donating. Thank you!