Support #myEDSchallenge #dayofthezebra and help me reach my goal!

I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society by participating in the "Day of the Zebra." Please support me by donating to my fundraising page. Together, even a small amount can make a huge difference!

Hi, Im Alyssa Reed! I am 19 years and I officially received a diagnosis of hEDS when I was 17 years old. I have exhibited symptoms my whole life but doctors could never fit the puzzle pieces together. I had very hyper-mobile joints, joint pain, fatigue, poor wound healing, skin that bruised easily, joint subluxations etc.. I went years misdiagnosed because a lot of doctors are unaware of EDS. I have been diagnosed with the following co conditions of EDS; Postural Orthostatic Tachycardia Syndrome, Chiari Malfomation, Craniocerical Instability/Cranial settling and have allergy/GI issues that are undiagnosed. I had a craniocervical fusion in May of 2018 to help treat all the instability as well brain & brainstem compression.

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with EDS to participate in the "Day of the Zebra" by donating. Thank you!