Lindsey Dwyer

Lindsey Dwyer's Fundraiser

Support #myEDSchallenge and help me reach my goal! image

Support #myEDSchallenge and help me reach my goal!

Together we can help those living with EDS get the information and care they need.

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$0 towards $300

I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society. Please support my efforts by donating to my fundraising page. Together, even a small amount can make a huge difference!

Last year, the society didn't have this nifty page and I made my own sweepstakes fundraiser (albeit months after awareness month). I was able to raise $250 for the Ehlers-Danlos Society then. Let's see if we can beat it this year! I have over 500 friends on Facebook. If each one of you donates less than 60ยข, we'll meet my goal of $300.

I've also given presentations on Ehlers-Danlos Syndrome (EDS) to Keller Williams Puget Sound Burien & the South End Coalition. Please let me know if you're interested in a 10-15 minute presentation at your next networking or team meeting. You can email me at lindsey@geekgirlre.com or message me on Facebook. Please note I am not a doctor and I am not officially affiliated with the Ehlers-Danlos Society. I can only speak from the experiences I've had and the research I have done as a patient.

Additionally, while the EDS Society chooses a new hashtag every year, I am still very partial to #ZebraStrong. I've also started using #BuildALadder in reference to Martina's tips on how to build a ladder out of a bad pain day.

My own personal journey to an EDS diagnosis was long, stressful, and painful. Please read my Facebook post on the subject if you want to know more.

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with EDS to participate in the #myEDSchallenge by donating. Thank you!