Support #myEDSchallenge and help me reach my goal!

I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society. Please support me by donating to my fundraising page and sharing this call to action. Together, even a small amount can make a huge difference!

My family has multiple generations with Ehlers-Danlos, though we did not realize what caused our range of symptoms until a little over a decade ago when my sister was diagnosed. This disorder impacts our lives in so many ways, the most obvious of which is daily pain, but also problems across wide-ranging body systems including neurological, cardiac, pulmonary, gastrointestinal, and others. My mother, sister, and I each lived decades with pain and other symptoms without diagnosis or treatment. With better knowledge, we could recognize signs and find a diagnosis for my daughter at a much earlier age.

With better awareness comes better diagnosis. With funds, we can improve research and treatment. As a rare disease, Ehlers-Danlos doesn't really have other sources of research funding. The Ehlers-Danlos Society is making this happen for us.

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with EDS to participate in the May Awareness Month Challenge by donating. Thank you!