Support #myEDSchallenge to raise awareness and funds!

I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society by participating in the #myEDSchallenge. Please support me this may by engaging with my posts, sharing them, and/or donating to my fundraising page.

I was diagnosed with Ehlers-Danlos Syndrome in 2016, but like most people with EDS and other rare diseases, my journey with the illness began at least ten years prior to my diagnosis. My hope is that by working together with the Ehlers-Danlos Society, we can raise awareness, support research initiatives, and improve diagnosis and outcomes for people with EDS and hypermobility spectrum disorders all over the world.

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.