Jenn Lloyd

Jenn Lloyd's Fundraiser

Help fund essential Ehlers Danlos Research and change lives. image

Help fund essential Ehlers Danlos Research and change lives.

Join me and help make a difference, please give today.

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$200 towards $3,500

Please join me in supporting real change. As many of you know, I was diagnosed with Ehlers Danlos Syndrome four years ago. I had symptoms and pain for most of my life. What I didn’t have were doctors who knew about EDS. Too many patients are suffering in silence, brushed off by doctors and/or misdiagnosed. There needs to be more research into EDS and better care for patients who suffer with it.

May is Ehlers Danlos Awareness month. This year the Ehlers Danlos Society is offering a chance to join Chief Scientific Officer, Prof Fransiska Malfait, in her challenge to cycle from Cambodia to Vietnam through participation in the #ehlersdanloschallenge. If I meet my fundraising goal, I will not only help fund life changing EDS research, but I will also get the opportunity to participate in this once in a lifetime bike ride. But I need your help. Just a small donation will go a long way in helping me meet my goal for the Ehlers-Danlos Society.