Support #myEDSchallenge and help me reach my goal!

I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society. Please support me by donating to my fundraising page. Together, even a small amount can make a huge difference!

My ‘official’ diagnosis came in 2017 after years of asking medical professionals, begging for answers. ( I had carried the diagnosis unofficially for about 6 years prior to that) Two weeks past my 33rd birthday, I have lived with symptoms my entire life and due to the peculiarities of this Syndrome my story is NOT unique. My hope is that by working together with the Ehlers-Danlos Society, we can raise awareness, support research initiatives, and improve diagnosis and outcomes for people with EDS and hypermobility spectrum disorders all over the world.

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with EDS to participate in the awareness campaign!