Rachel Elizabeth

Rachel Elizabeth's Fundraiser

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Help Us Spread Awareness for EDS

Overcoming EDS Challenges

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Zebra Strong for The Ehlers-Danlos Society

I am raising awareness and funds for The Ehlers-Danlos Society. Together, even a small amount can make a huge difference! The Ehlers-Danlos syndromes (EDS) are a group of 14 heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Hallmark symptoms across all types are hypermobile joints, skin hyperextensibility, & tissue fragility. Each case is unique and severity may range dramatically, even within families.

My name is Rachel Willey and I was diagnosed with hEDS at age 12. It has dramatically impacted my daily life and continues to do so. Since May is Ehlers-Danlos awareness month, I thought this would be a good way to help me and my fellow zebras in our journey

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.


Please support me, and together we will overcome!