Support #myEDSchallenge and help me reach my goal!

I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society in honor of our son Carson and myself. Please support us by donating to my fundraising page. Together, even a small amount can make a huge difference!

I was diagnosed a little over a year ago after having unrecognized symptoms my whole life. I was always bendy and stretchy and I thought that was a good thing until it wasn’t. I always had an “itis”, “osis”, or “ism” growing up. Diagnosed with Hashimoto's Thyroiditis at 13 and numerous injuries and fractures. More than my friends and I didn’t even play sports. It took an adverse reaction to an antibiotic a couple years ago, Levaquinn, causing wide spread peripheral neuropathy/muscular weakness and a spontaneous hematoma (bruise) on my chest without injury to get the medical communities attention in late 2017. Levaquinn is now contraindicated in people with Ehlers Danlos Syndrome. I didn’t know I had that at the time and the Levaquinn package insert did not have that warning ⚠️ either. I had to research this condition myself to find answers after I was misdiagnosed with Fibromyalgia and Anxiety Disorder among many other autoimmune disorders. This is the most common condition you have never heard of and we need to raise awareness and educate physicians on this genetic condition. Please donate to this campaign and help us this month. Every dollar 💵 makes a difference!

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me and my son as we overcome our challenges with EDS and participate in #myEDSchallenge by donating. Thank you!