Awareness for Connective Tissue Disorders

I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society by participating to raise awareness of the mobility issues. Please support me by donating to my fundraising page. Together, even a small amount can make a huge difference!

I grew up thinking that i was just weird and that the little symptoms that i experienced was random and just me. Now that I have my first diagnosis of Hypermobility Spectrum Disorder, Fibromyalgia, and Osteoarthritis I can connect the dots. I have a multi systematic disorder that shows different and random symptoms. Very hard to pinpoint why unless you have a diagnosis. Pain is my normal but not normal for everyone. I now know what I have to look forward to in life, denial letters, surgeries, healing, and pain. This is a very hard disorder to live with and manage. The frustration is that it is an invisible illness and you face people who don't believe your issues. Spread awareness so more can get diagnosed and aknowledged that they aren't a hypochondriac.

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with EDS to participate in the May Awareness by donating. Thank you!