Rachel Probst

Rachel Probst's Fundraiser

Support #myEDSchallenge and help me reach my goal! image

Support #myEDSchallenge and help me reach my goal!

Together we can change what EDS care looks like

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I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society by participating in a challenge everyday with my husband and my kids. Each day we will pick a new challenge to tackle, whether it be a 3 mile walk, 1/2 mi run, walk the zoo, walk the monuments, etc. I will put an update up in the comments section on what our next challenge will be and I’ll also be posting on my IG @therealleep. Please support me and my family by donating to my fundraising page. Together, we can make a difference!

Each day I will make a couple of posts about my EDS story and what having EDS has meant to me. Please follow us in our journey through the month of May challenges on Instagram @therealleep

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with EDS to participate in life by donating. Thank you!