Lara Bloom's Fundraiser
Support #myEDSchallenge and help me reach my goal!
Together we can improve the lives of all with EDS, world wide
We are no longer accepting donations on this campaign, but there are other ways for you to support us today!
A supporter of Lara Bloom
"Lara does so much to inspire our family. My daughter was diagnosed with hEDS in December, and we've had so much to learn since then. Go go go!"
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Erin Marslen
"Go Lara! Love watching your posts from the trip. Good luck reaching your goal! "
$25
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Megan Beveridge
"Awesome work Lara and all the team "
$20
Katie Bergeron
"Keep going my fellow zebra. KB"
$30
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David Demasi
"Good luck!! Thanks for everything you do for vEDS."
A supporter of Lara Bloom
I donated in support of this campaign.
A supporter of Lara Bloom
I donated in support of this campaign.
$10
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Nicole Boice
"Lara Bloom is a bad ass!!! You rock my friend!"
$100
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Sophie Hulme
"Congratulations Lara and good luck!"
$50
Sandy Chack
I donated in support of this campaign.
$250
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Clair Francomano
"In deep appreciation for all you do for the Ehlers-Danlos Society!! "
$500
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Christine Leo
I donated in support of this campaign.
$50
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Cathy Pharis
"Thank you for all you do!"
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Jan Hempstead
I donated in support of this campaign.
$150
A supporter of Lara Bloom
"Thank you for all you do for us Zebras, Lara!"
Jill Berry
I donated in support of this campaign.
$5
Frances Marin
"In memory of Chrystal"
$25
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Sharon Yoh
I donated in support of this campaign.
$100
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Jen Carter
"Go get em Lara x"
$5
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Diana Patterson
I donated in support of this campaign.
$25
A supporter of Lara Bloom
"Excited to follow your journey! Just keep pedaling! "
$25
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Sally Protzman
"Enjoy the ride. Thanks for representing!"
$20
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Gretchen Alvarez
"So excited for you! You can do this! "
$25
A supporter of Lara Bloom
"This is to support the fundraising effort by Lara during her bicycle ride in the upcoming couple of weeks"
Holly Melisi
I donated in support of this campaign.
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Woodrow (Woody) Gandy
I donated in support of this campaign.
$500
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Helena Clunies-Ross
I donated in support of this campaign.
$50
A supporter of Lara Bloom
I donated in support of this campaign.
-
Sandy Chack
I donated in support of this campaign.
$100
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Heidi Collins
I donated in support of this campaign.
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Seth Rotberg
"Continue to inspire many in the health community!"
Elizabeth Greig
I donated in support of this campaign.
$10
For my UK friends and supporters please visit this page - https://www.justgiving.com/fundraising/larabloomedschallenge
It's been eight years since my last challenge living with EDS when I walked 26.2 miles and completed the London Marathon, despite having barely walked more than three miles at a time before in my life due to Ehlers-Danlos syndrome. Despite fracturing my foot on the 13th mile and suffering with a severe chest infection that hospitalised my two weeks before the race, it was the best day of my life and made me realise how essential it is to have strong muscles and strong mind to have the best quality of life possible when living with a chronic illness.
I was diagnosed with Ehlers-Danlos syndrome in 2004, 12 years after my symptoms began. It simply isn't good enough, we must ensure that people no longer have to wait years to be managed and cared for. It is making people so much sicker than they need to be, it is killing people.
To better manage my symptoms, walking and cycling have now become a regular part of my life and I have decided that the time is right to take up another challenge. Despite all the fantastic progression since we launched The Ehlers-Danlos Society in 2016 with the EDS Global Registry, EDS ECHO, the Hypermobile EDS gene study (HEDGE) and the fantastic work of the International Consortium, there is still so much to be done. We want to get to a time where geography and wealth no longer determine your quality fo life with EDS and HSD. I want to tell people I live with EDS and for them to know what it means.
I am going to join our Chief Scientific Officer, Prof Fransiska Malfait, in her challenge to cycle from Cambodia to Vietnam in February 2020. Despite various problems from my EDS, I have been given medical clearance to begin training and I plan to reach the finishing line for all of our community, just like I did in 2011, and raise as much awareness as I can.
Anything you can contribute to this will go towards us making things better for those living with EDS and enabling The Ehlers-Danlos Society do essential research and change lives. Our strength begins with hope. Thank you so much for your support, it means the world.