Support #myEDSchallenge and help me reach my goal!

I have joined the May Awareness Month Challenge to spread awareness and raise funds to support The Ehlers-Danlos Society by participating in the monthly challenges to help spread awareness. Please support me by donating to my fundraising page. Together, even a small amount can make a huge difference!

Most of y’all know I have EDS and how it has drastically changed my life. I have learned to love being a zebra and I am finding ways to have the best life possible while dealing with my health conditions. I was diagnosed with EDS at the age of 16, yet it was genetically given to me at birth. Think of how different my life would be right now if I didnt have to wait 16 years to be diagnosed and get the proper help I needed. That’s why I’m asking for donations to help the Ehlers-Danlos society continue research. The hope is that other boys and girls don’t have to wait 16 years to finally get the help and diagnoses they need.

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with EDS to participate in the Monthly Challenge by donating. Thank you!