Cassandra Columbia

Cassandra Columbia's Fundraiser

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Overcoming EDS Challenges

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Zebra Strong for The Ehlers-Danlos Society

My name is Cassandra Columbia. I am 13 years old. I was diagnosed with Ehlers Danlos Syndrome about 4 years ago. I didn't understand it much, I knew something was wrong. I was always sick and tired and had random bruising all the time! I had migraines that left me in bed for days and things started to dislocate randomly. My knees always hurt along with my wrists. I was put into physical therapy where they then told me the way my body moves It looks like I may have Ehlers Danlos Syndrome. I then went to Dartmouth where I was diagnosed with Ehlers Danlos Syndrome type 3. After I was diagnosed my life changed drastically. I now have a check up once a week (where they sent me to have a sleep study and diagnosed me with narcolepsy). I am very limited to the things Im able to do and I get warn out so easy. Since this condition is not visible it is very much misunderstood. I don't expect people to understand something I don't understand fully though. with all the hospital bills me and my zebras face I am trying to raise awareness and funds for The Ehlers-Danlos Society. Together, even a small amount can make a huge difference! The Ehlers-Danlos syndromes (EDS) are a group of 14 heritable connective tissue disorders that produce a spectrum of complex problems across multiple systems of the body. Hallmark symptoms across all types are hypermobile joints, skin hyperextensibility, & tissue fragility. Each case is unique and severity may range dramatically, even within families.

The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.


Please support me, and together we will overcome!