Linda Neumann-Potash

Linda Neumann-Potash's Fundraiser

Together we will find a brighter day for those affected by Ehlers-Danlos Syndrome and HSD! image

Together we will find a brighter day for those affected by Ehlers-Danlos Syndrome and HSD!

Help me make my milestone 60th birthday year special by going the extra mile in helping others affected by Ehlers-Danlos Syndrome, HSD and their families.

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$27,065 towards $60,000

I committed to go the extra mile to spread awareness and raise funds for the Ehlers-Danlos syndromes, so I joined The Ehlers-Danlos Society’s Awareness Adventure Challenge to e-cycle through Cambodia and Vietnam in February 2020. Together, even a small amount can make a huge difference in helping me reach this epic goal. Please support me by donating to my fundraising page. The money I raise will go towards education of health care professionals on Ehlers-Danlos Syndromes and HSD.

Being diagnosed with Ehlers-Danlos Syndrome challenged me to step out of my comfort zone and not only challenge myself but hopefully inspire others to do same. I've learned in the last 30+ years since my diagnosis that that I can achieve any goal that I set my mind to. Thanks to the flexibility that EDS has given me (in mind and body). I can achieve anything! It may not be in the most traditional way but in the end I get it done! Being stubborn doesn't hurt either.

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders, that can affect multiple systems of the body. Symptoms often seen across all types, are hypermobile joints, stretchy skin and fragile tissues. Each case is unique, and severity may range dramatically, even within families.

Hypermobility spectrum disorders (HSD) are a group of conditions related to joint hypermobility (JH). HSD are intended to be diagnosed after other possible answers are excluded, such as any of the Ehlers-Danlos syndromes (EDS) including hypermobile EDS (hEDS). HSD, just like hEDS, can have significant effects on our health.

The Ehlers-Danlos Society is a global community dedicated to saving, and improving the lives of, those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, and related conditions and their families. Our goal is world-wide awareness, and better quality of life for all who suffer from these conditions, regardless of geography.

Please support me as I overcome my challenges with [EDS/HSD] by exploring Cambodia and Vietnam on The Ehlers-Danlos Society’s Awareness Adventure Challenge.