F. Caulfield's Fundraiser
Give today to make a difference in the lives of people living with Ehlers-Danlos Syndrome.
Help us build a new infrastructure for discovery, treatment, and community—globally.
We are no longer accepting donations on this campaign, but there are other ways for you to support us today!
Nancy Chaikin
"Hope for a cure someday very soon!"
$100
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Megan Barrett
I donated in support of this campaign.
$300
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Timmian Massie
"In loving honor of my buddy Cole, a fighter whose heart knows no bounds."
$200
Nicholas Valle
I donated in support of this campaign.
$100
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F. Caulfield
"Putting money where my mouth is"
$100
I am me but I am also as person with EHLERS DANLOS. These two words come with a battery of other related health issues. including but not limited to; Postural orthostatic tachycardia, rheumatoid arthritis, Raynaud's syndrome, chronic pain, Joint hypermobility (sublexing and dislocating major joints and minor), gastroparesis(think diarrhea and constipation for ever), anxiety, depression, bunions and tailors bunions, chronic fatigue, vision loss, ulcers, GERD, Chronic Pain, Intercostal neuritis, my lungs have collapsed 3 times despite efforts to prevent them from doing this spontaneously, and i'm sure there's more i'm sure i'm not even thinking about. I'm 34!
This month is a month of awareness for me and my community of medical zebras! I will be posting every day for educational purposes as well as awareness! The reason I don't call Ehlers Danlos rare is because it technically isn't, it's just rarely diagnosed. I myself have been on the path to diagnosis for over ten years. Only once I finally was told I have EDS I have now come to find I more likely have one of the rarer sub-types cvEDS.
This month, meet me and my friends, follow our tags #myHSDchallenge #myEDSchallenge and
Join me in supporting real change. Let’s support good in the world and make a difference.
Just a small donation will go a long way to helping me meet my goal for The Ehlers-Danlos Society